Wednesday, December 2, 2009
Another grand, grand rounds
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Sunday, November 29, 2009
News—bad or good, depending on how I choose to view it
I’ve waited a month to write this because I wasn’t quite ready to broadcast the truth. I’ve just felt too ashamed and embarrassed to let people know. Although I suppose there were some clues that it wasn’t working out flawlessly, stupidly, I really had no idea, thought things were going well. Hell’s bells. I guess I just have had a knack for working for persons with huge personalities; have to just chalk this up as another episode where my intensity clashed with a rigid ego, and as usual, I’m the one packing.
So what am I going to do? I’ve taken stock. I should be eligible for unemployment compensation, which will be a great help if I do not find another job right away. The timing was favorable in some ways, as just after the shock of learning that I am losing my job, I attended the second part of the Harvard Palliative Care and Education Program in Boston and during the week there, I felt an enormous amount of support and encouragement. It seems very likely that I will be able to find work in my field, just have to suck it up and do the thing again, change my life totally once again. Actually, I’m starting to get up to speed. I’ve had one job interview and another one next week, two more planned for the following week. It is likely that I’ll find another job in palliative care in Washington and stay here. I love the Pacific NW, and even though I may not find a job in the Seattle area, and may have to move again, I‘ve decided that I want to stay in this area.
So that’s the story, folks. Just wanted you to know. I’m fine. If you know me, you know I’m open to change and am good at rolling with the punches. This situation reminded me of Ede, my mom, who after many years of stable employment, in her late sixties lost first one job and then another, wasn’t ready to retire, so found one last job, retiring in her 70s. I'll turn 60 in February, and am certainly not ready for retirement, at least not financially! I’ll let you know the next chapter after I’ve written it.
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Thursday, November 26, 2009
Spelunker
If there is a harder way
He will choose it
There always is
It takes memory to snake inside
That crevice at Peril's Peak
You could get hung upside down
Blood unable to circulate in the narrows
Chest crushed, heart losing heart
Risking complete shut-down
To follow that byzantine memory
Filling the holes time has rent through the body
Liquor trickling down stone
Finding only that path, one-way
That harder way: out, but never out
Always, never, regretting
Traveling alone
Traveling this way
Accepting finally
The need to be who he is
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Wednesday, November 25, 2009
Monday, October 12, 2009
Palliative Care Grand Rounds: October 2009
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Saturday, September 26, 2009
kol nidre
Then there are the Jews who only go to shul on the high holy days, that is, on Rosh Hashanah and Yom Kippur. You have to pay for tickets for these popular services, they are long affairs, with much standing, prayer, meditation, and socializing. Then there are those whose only absolute must-attend service is on erev Yom Kippur, which this year is tomorrow evening. This is when the Kol Nidre is chanted. It is such a beautiful melody, so evocative of centuries of Jewish faith that many of us cry when we hear it sung.
Rosh Hashanah is the celebration of the new year in the Jewish calendar, and Yom Kippur is the "Day of Atonement" when Jews fast and publicly announce our personal and collective guilt and sins, ask for forgiveness and to be "written in the book" for another year of life.
Kol Nidre is an odd prayer, sung not in Hebrew, but in Aramaic (the common-people language that Jesus is thought to have spoken) asking for release from all vows and oaths that we have not kept, and may not keep in the coming year. There are many rabbinic and esoteric (and of course, some antisemitic) explanations of this prayer, but I think it is a lovely way to remind ourselves that we are human and do not, cannot, always keep the promises we make. As the day is spent in repentance for acts of commission and omission, the failure to do all that we hoped to do is certainly a source of regret and sadness.
I certainly regret promises that I did not keep this year. There is the funeral that I promised to attend, but was unable to because I had to work that day; the promise that I would bring a patient a Reuben sandwich , and then forgot, and he died before the next time I planned a visit. My list of small promises not kept is quite lengthy. In my work-life, people often die before I can do what I hope to do, offer to do, vow to do to make their life a little sweeter.
We dip apples in honey on Rosh Hashanah, hoping for a sweet year. Most of us want another year, although I know many people who hope to die, rather than endure another year of suffering. We cannot assume that we have another year to live, or that the year will be good. Certainly we cannot assume that we will be able to fulfill all of our promises this year. I am learning to promise less, so I will feel less regret. Still, I will go to shul tomorrow to hear Kol Nidre chanted as it has been done for centuries, bringing past into present, absolving me for being human, imperfect, less than my promises suggest.
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Monday, September 21, 2009
Seattle Air
Today I noticed the air in Seattle. It’s soft, spongy, almost silky. As waters in different places differ to the mouth, local air has a unique sensation against the face, upon bare arms. The soothing Seattle air makes me happy I moved here. It’s the kind of surprise that keeps me plodding on through my life, taking risks, hoping for the salvation of discovery. Not same-old, same-old every day, but something entirely fresh and welcome to consider.
Yesterday, in yoga, during shavasana—the corpse pose that conclues every yoga class—I spun off and left my body. This is not an experience I have often, maybe once in a decade. I don't know if most people do or do not have out of body experiences, but in my experience they can be quite seductive. Floating away from the body, hovering nearby, observing all, fully at peace. As the singing bell sounded, softly, softly, a little louder, a little louder, I knew that I was much too far away to re-enter gently. I crashed back into corporeality. There was a dense and painful impact in all of my senses. I was unable to wiggle toes, roll on my right side, and sit up. I felt totally miserable because for a moment, I’d had the sense that I could be alive without my body, without the cumbersome, achy, pain of this body. And yet, I know that I don’t really believe that the consciousness I know as “me” will survive the life of this body. Recovery, re-entry took a while.
Later, continuing with my plan for the day, I picked up Pete from the nursing home and we went shopping at the Village Thrift Shop, Pete making good progress with his cane, 79 years and more spry than I expected. And I needn’t have worried that we would have trouble finding the place. As we circled a promising perimeter, Pete would say, "hmm this looks so familiar" and then lean out the open window and ask for directions willy-nilly at every corner, until someone told us how to get there. I got a parking spot right in front of the store. Pete bought a winter coat and scarf, a spiffy blue sweater, and two pairs of shoes. Very good taste, I thought. We stopped at Rite Aid and he picked up underwear and socks. In less than 90 minutes we were back at the nursing home, Pete humming as he put his new things in the half closet he shares with a roommate.
Here's the thing. Pete moved to the nursing home from the hospital and never once got to go back to his apartment and get his things. He has been without shoes for 5 months, shuffling along in plushy slippers that someone at the home found for him. No one—and this includes me—thought to take him shopping for basics. He had money, but no wheels. He was pretty happy about the outing. To tell the truth, so was I. It’s like the soft Seattle air. The sensation of weightlessness for a moment. The idea that there are discoveries yet to make. Alongside the drudgery of the body, decaying day by day, until it goes. I think it might be enough.
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Saturday, September 12, 2009
Reform? No. I still want Revolution.
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Monday, August 3, 2009
Palliative Care Grand Rounds: August 2009
Jessica Knapp at The Good Death
Thaddeus Pope at Medical Futility
Angela Morrow at About.com The Palliative Care Blog
PCGR now has subscription options; you can follow by email or RSS feed.
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Saturday, July 25, 2009
Palliative Care Grand Rounds

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A Day in the Life
Two of my patients are in the hospital. I'll see them first. Then I can go to the nursing home and do my home visits.
RB, 26 years old, wants to go home, has no idea--none--how sick he is how close he is to maybe not leaving the hospital alive. Septic emboli throughout his chest, heart valve about to blow, but can't be repaired, fungus growing in his brain. Yesterday I filled out the POLST form with him--Physician's Orders for Life Sustaining Treatment. We will not resuscitate him if the valve blows or he has a devastating stroke--either is possible. We will let him die, because if those things happen, resuscitation will not bring him back in any meaningful way. I don't even want to think about him dying now, so I haven't really had that conversation with him. That conversation is about much more than code status, you see. Besides, he doesn't look that sick and he is going stir crazy in that bed. He wants to tell his physicians what drugs to give him--pain meds, benzos, sleep aids. In turn, they are asking me what to do. Because I know him from clinic, because these are drugs that I prescribe for him. On the outside. We are all afraid he might walk out of the hospital AMA--against medical advice, despite the reality that he can barely walk after 2 weeks in the hospital. The resident asks me if we could send him home on hospice, but, like I said, I'm not there yet. I am rooting for him. Maybe it would be ok to sedate him a bit, at least he would stay here.
LK, 62 year old schizophrenic woman living in an adult family home found out she had laryngeal cancer and freaked out, landing in an involuntary admission to the psych ward. I know her from clinic too, where I manage chronic pain from peripheral neuropathy. She is having angry outbursts, unable to contain her emotions, making threats, feels that everyone wants to kill her, but also is having trouble breathing and sleeping. She did agree to some chemotherapy, but it's not going to buy her much time. Besides, they had to give her steroids prior to chemo, and steroids make sane people act crazy. My job- to talk to her about end of life issues. I think she trusts me, but this week is not the right time for this conversation. Best to work on her anxiety and insomnia first. Unfortunately, she doesn't have much time.
PJ with end-stage lung disease calls to tell me she has green sputum again. I go to the nursing home to visit, prescribe antibiotics and cough syrup, order sputum cultures, sit with her a while. "Am I going to have to go into the hospital?" she asks me. I answer, "I don't think so. I think you'll do just fine on the antibiotics." We've been arounsthis block many times over the past 8 months. Once when I didn't think there was a new problem to treat, I told her not to worry, I said, "You're not sick." She paged me later in the day, panicky. "If I'm not sick, are they going to kick me out of the nursing home?" She can walk about 12 feet without almost collapsing from breathlessness. In this job, I learn over and over, you have to be careful what you say.
Another nursing home patient, LF. She is a 70 year old Croatian woman who speaks some English but is hard to understand because of esophageal cancer. Today, I sat very close and listened very carefully. She had a lot to say. A long sad story. I feel most useful when I just listen.
Next, a home visit. KD, an 85 year old feisty woman with end stage heart disease. Living alone, daughter lives nearby. Has been doing ok, but has gotten weaker, now out of breath on her oxygen with conversation. Isn't eating or bathing. And her oxygenation is bad enough to be causing some confusion. Refused hospice last month, but today is agreeable to having a nurse visit twice a week. At first, in her usual way, she is cheerful and upbeat, but then turns solemn. "Aren't you supposed to be able to give me something, some pills, so I can die now instead of dragging this out?"I can't because I am not a physician, but living in Washington State, where this is her legal right, I have to take this request seriously. Later today I will notify the medical director at the hospital and call Compassion and Choices, who will send someone out to explain the process to her. I’ll call her old primary care doctor and ask if he is willing to help her, but when I reach him, he says no. When I explained to her daughter that someone would be calling her to schedule a visit, she was very anxious. "Do I have to be there?" Meaning, when she dies. No, she won't, volunteers are available to sit with patient's who decide to hasten death in this way. But I reassure her, "I don't think she is going to live long enough to go through with it." But I'm not sure how reassuring that is.
Last home visit. RB, 60 year old man with end stage liver disease from hepatocellular carcinoma, which comes from chronic infection with Hepatitis C, which comes from shooting drugs and is made worse by heavy drinking. He is really pissed at me, my last note mentioned that he is still drinking (he is still drinking) and his doctor and the social worker more or less ganged up on him in clinic last week. "Damn, I thought that was between me and you. I need someone I can just talk to. I'm going to die anyway. I thought you understood." There were beer cans everywhere, but he was so right, it was a violation of trust, although I didn't realize that when I wrote my note. I guess I just didn't believe anyone would give this guy a hard time about it. Dumb of me. He accepted my apology. I think we're ok. Did he fill out the health care proxy form I left with him? "I lost it,” he said, "give me another one and I'll fill it out". I think he wants me to visit again next week.
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Sunday, July 12, 2009
Still missing you

For Jon Marshall Greenberg, God is gracious.
February 22, 1956 - July 12, 1993
Journal entry, undated, in the year of his death, 1993
I have been learning, since I first opened that door, to handle spiritual reality for increasingly longer periods of time. It’s wild in there. I can now handle it for almost three seconds.
Jon taught me everything I live and know about death and dying. He taught me many other things, but for this lesson, I am daily thankful. I am relieved, even grateful, to find no cure for life, to come to know life as death’s bas-relief. You may balk at this statement, but sooner or later you will confront its veracity. You may rage at human transience; I would gently suggest that you confront your simple mortality. Your wellbeing, your growth, your soul, your comfort, your legacy, your journey towards death depend upon this dictim. This is needed, even essential--at least in the complex world we inhabit, at least as much as women need midwives and doulas to transition into motherhood. I hold these views because of my friend Jon, who deserves credit for so much in my mature life. Jon didn’t want a cure, asked us to burn his body in the street and eat his flesh, dutifully confronted us with out own forthcoming mortality. Every day, I wish to remind myself of how often I fell short of being the kind of friend he needed. Although I didn't know it at the time, I had magic-wand ambitions, hadn't yet learned the value of presence and silence. The gift of time. The measure of comfort and being-with. I hadn't lost the need to fix things in my own image, didn't receive these gifts, embody these skills (if I even have) until after he left.
But I did carry on. And I do resist a cure for what ails me, what I am dying of, what I am made of. I resist the very notion of cure as it is presented in so-called western medicine. I prefer to sit with people who long for cures, but must settle for life-as-it-is, helping, if I can, transform horror, by improvisation, into a soothing lotion rubbed onto the naked body, sealing in the private journey and cherishing what is out of reach, a final untouched meal.
Some of my poems about Jon can be read here.
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Friday, July 3, 2009
Another Great Grand Rounds!
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Saturday, June 6, 2009
Scribbles from 2 days at the trauma conference
Preventing falls? C-PAP or tai chi?
Probably not.
Ice cave collapse
Finding myself in the crevices/between places
Where I do not belong
Radio this morning: Air France jet disappears on route.
Shaken-baby syndrome
Blast injuries
Death—it’s just the tip of the iceberg
Acute stress disorder
Emotional recovery
Exposure therapy
Maslow's hierarchy
Desensitization
Thought stopping
Cognitive restructuring
Safety in the world
All things undone
Feeling hits me
Life is a trigger
Reminds me of my essential loneliness
Inability to connect/to be with/to belong
To become
Reminds me of death
Reminds me of the essential misunderstandings that encase a life/mine
Things unsaid/said wrongly
The problem of re-reading
The problem of hope
The problem of expectations and false maneuvers
Hidden motivations
It’s all memory anyway
Nothing really happens. Or is that.
Dissociation. Speaking.
Hemipelvectomy.
Where do I belong, hanging
Between life and death, favoring
Death, always favoring death because
Death always prevails. Always.
And time is such a useless concept in the face
Of death. How could it matter, if I am going to die
Anyway. There is the odd concept of waste. Waste of time.
Wasted food. Wasted resources. Waste of energy.
But if energy-matter can neither be created
Or destroyed (and how could that be so?)
Then what is waste?
Wasteful/useless
The same? Or different?
Top 10 Trauma Center topics
*hemostatic dressings
*trauma systems designs
*goal-directed resuscitation
*human genome response to injury (why am I not surprised by this?)
*factor VIIA
*artificial fascia
*endovascular surgery
And a couple more I don’t remember
Learnings? Not sure what I learned today.
DAY 2
Can’t explain these sudden dives and tumbles, feeling bad about self
Comes and goes
Best to learn to “live” with it.
Life is short.
Fresh whole blood in Tikrit
Routine, every day volunteers
Sitting in the mess tent with nothing else to do
Injury severity score
But how do they get used to war?
Even as medical providers?
Is it no different than getting used to:
Death in the hospital?
Abortion?
Assisted death?
Trauma care in general?
Palliative care? Ah, palliative care!
Mixtures of fluids is tricky, surprising, potentially fatal.
(so you see, the trick is understanding data on your own terms)
Hypotension is bad for the injured brain.
But who pays the oxygen debt?
98,000 deaths a year from medical errors
Now, everyone is scribbling
Now on to child abuse
(as about 1/3 of the audience gets up and leaves the auditorium)
“The enemy of good is better” James C. Carrico, MD
Why don't they listen to this guy?
Right and left do make a difference
The racemic mix just didn't work as well.
But no one noticed.
Life imitates science.
Watching the young woman on the aisle
Tuck her bare feet under her bottom, comfy.
Antioxidants improve resuscitation outcomes
The age of the blood affects outcomes.
You don’t want old blood.
Gene-banger. What’s that?
This is a young man’s game, methinks.
If the gut works, use it.
Neuropraxia
Transient quadriplegia
Plexopathy
Nerve root injury
Funiculi
Foraminotomy
Transfusion-related acute lung injury
Platelets must be stored at room temperature, higher risk of transmission
No longer using plasma from females
Older blood-more likely to die—third speaker who says this!
Cryoprecipitate
Second impact syndrome
Lunchtime. I hate small talk, choose to take a walk rather than sit at a table with strangers eating hotel food. Am I an arrogant shit? Probably. But, trauma conference—focus is on war and sports injuries—why am I here? Would rather write a blog than talk. Arrogant shit? No doubt.
Trauma surgeons with their PP slides of bloody flesh, distorted faces, missing limbs--these bring pain into vision. But few outside this club can look. I suppose that I can sit with strangers after all, these comrades who can look at carnage, and then eat lunch.
Preventing ventilator-related pneumonia.
The ventilator bundle.
They look much better, after we place the trach.
Really cute speaker, little crush here!
Thinking about when I wanted to die for every misstep, every miscalculation, every misunderstanding. Now I don’t think about wanting to die,
because I know that I will soon enough. No matter what.
So that’s why I do this work? So I won’t think about suicide as an option?
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Wednesday, June 3, 2009
Palliative Care Grand Rounds is hosted on the first Wednesday of every month and rotated through various palliative care blogs. For issues 1-4 of Palliative Care Grand Rounds (PGR), visit the the PGR homepage.
Keep an eye out. I'll be hosting PGR one of these months!
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